Mommy's Aches & Pains Growing Up with a "chronic" illness - CAN ANYONE RELATE?

By the name of this post, some of you might roll your eyes and say oh no! Not again! Some might say, that's her an open book. Some might say, Shut Up Already! Some might say, me too.

I am hoping that some might open up to me as a woman who is a mom, and either share their challenges of being a women to help us all get through this thing called life.

Growing up watching my mother deteriorate from her illness, before she was diagnosed in 1991, we guessed what could possibly be wrong. The few times my mother agreed to go to a doctor, back in the 80's, they thought she drank too much caffeine and that maybe she should just switch to decaf. That is how unpopular her illness was in the area I was from. Only over the last few years with the Internet, were people able to branch out and see other's affected like themselves in different parts of the country and the world. To see that there was help out there for caregivers, societies to be involved in that do fundraising for research, to find other families with the same similar stories or backgrounds that you knew- they knew. Nothing else had to be said. They knew and you knew and you could just hug and breathe.

I have (due to my own scattered brain sometimes) limited amount of awareness about my mother's illness. Eric is better at understanding it from a medical point of view. He retains things better and can repeat it back to you 10 years later from a visit 10 years past, as if he was just there.

I think because of the upbringing and growing up watching your mother and family deteriorate with a chronic illness, might have definitely done something to my ability to fully emotionally develop to be able to deal with crisis', to deal with chaos and have some of the basic strengths other women have? I know that I had to step into "mother" frame of mind growing up worrying about my brothers and father. I am not complaining being the only girl, but the weight was on my shoulders (that I put there myself) to make things "right". My brothers and father and myself always had love from each other and that is still precedent today, but when everything was chaotic we all did what we could to survive that moment. One moment at a time. And now almost 25+ years later, it's like we have to pick up the pieces of our shattered selves that we had become and try to stay whole.

Over the past few years due to infertility, being 300+ miles from my "blood family" and childhood friends and relatives, watching my mother deteriorate, go into a nursing home, have a baby, be a motherless daughter even while she was still alive and then in Feb 2006 her to finally be at peace and marital issues I have suffered from major depressions.

Previously these were diagnosed as "Seasonal Affective Disorder", as "situational", as possibly "bi-polar", as "Hypothyroid" (which was found due to infertility), as Hashimoto's Disease which is a thyroid disease, as possibly "pmd" (severe PMS) due to my symptoms always getting worse anywhere between two weeks of the month.

I am still at a loss as to what "label" I should call myself.

I don't know what to do about it anymore.

I tried to start this blog for a million reasons, sharing my son with my family near and far, having a journal of and for him from me to see how much I loved him if God forbid one day I'm not there, to separate each of my "issues" to give them each a place where I could get them out of me and down on "paper", to help me stay connected to the outside world, to give me my creativity back as a human being, to give me my own little place that was mine while maybe making friends out there in the world who possibly can relate to any of this and so my corner of my room wouldn't become as isolated as my mother's had been.

My mother didn't have the Internet. She had well lost her capacity to verbalize, type, communicate by the time the computers came around. She was a victim of the "old world" that meant if it happened behind closed doors, no one would see or know so she suffered many years of pain and silence when the world outside was loud and happy, she wasn't seen or heard in her room day after day. My father was her major outside connection with the world, taking her out for rides just to get her to breathe the air, see the views. I don't know how it happened but it really was a miracle that she chose him in life and that he didn't give up.

Many people would say to me over the years, you're father was a saint. So many men would have given up and just walked away.

Thank You God that he didn't.

It's unbelievable that someone could love someone that much. There were frustrating times for him on a daily basis, but he never wavered from standing by her side or sitting by her side in the end even falling asleep at her feet of her bed at the nursing home.

The reason I started all of this rehashing today is simply this. It's that time of the month. My father and husband and brothers are now embarrassed by my coming out to the world about it, but I don't care.

It's a scary thought sometimes being a woman. Especially when I don't know what the heck is going on with me. And that I have to put on a smile all the time for my son or get myself up in the morning to get dressed and get through the day. It's a daily battle for me and I just want people to know that if I could take a pill to make myself "whole" I would. As it is I take Celexa for anxiety and Thyroid medicine.

This time I said some things to someone I love very much, that might have been more than hurtful.

That someone is my brother J.

He happened to call me a little name on the wrong day.

20 years worth of pain came out and he was the reciprocate of that pain.

He is the most wonderful father to his girls and the most wonderful uncle to his nephew, the most wonderful son to his father and the most wonderful brother to his sister.

I do not change the way I feel about certain issues, like wishing my son had family near by and his and my love for them. I can't change the way things are. That is why I constantly am the one traveling to PA or to wherever to make sure that I do my part for Matthew to have "family" or friends. I will continue to do it, because he needs to know his family in PA as much as his family in MA.

So I am getting off now because I have to find a way to shower. Eric took Matthew to school and then I have to go get him.

I really just wanted everything out there today because in my gut and in my heart, I have everything to fight for. A beautiful son, a husband and home and for my mom I'm not giving in to this womanly stuff without a battle a fight. I refuse to let one more winter go by, with me just sitting still through it.

oh yeah and don't forget that mountain called 40 in few months...

things are just a little bit much right now.